Prostate Clinic London

What Should You Do If Your Husband Has Prostate Cancer?

Finding out that your husband has prostate cancer can change your everyday life almost immediately. You may feel worried about his health, uncertain about treatment and concerned about what the diagnosis could mean for your relationship and future.

You may also feel pressure to stay strong and positive for him while managing your own emotions. There is no single right way to respond, and you do not need to have all the answers straight away.

You can support your husband by listening, learning about his diagnosis and helping with practical tasks, while respecting that he remains at the centre of decisions about his body, treatment and medical information. The diagnosis can affect both of you, so your feelings, needs and wellbeing matter too. Prostate cancer may change your plans, priorities and relationship dynamics, which is why support for partners is also important.

Give Yourself Time to Process the Diagnosis

A prostate cancer diagnosis can bring many emotions, including shock, fear, sadness, anger and confusion. Even when you are told that the cancer is treatable or slow-growing, hearing the word cancer can make it difficult to take in all the information at once.

Give yourself and your husband time to process what has happened. You may need several conversations with his medical team before the diagnosis, treatment options and next steps start to feel clearer.

Your way of coping may also be different from your husband’s. He may want to research every detail, avoid discussing it or continue with normal routines while he processes the diagnosis in his own way.

Key Takeaways

  • Ask your husband what type of support he wants rather than assuming what he needs.
  • Attend appointments and receive medical information only with his permission.
  • Learn about the benefits and possible side effects of every suitable treatment option.
  • Encourage him to report physical or emotional side effects rather than managing them alone.
  • Keep urgent hospital and oncology contact details easy to access.
  • Make space for changes in communication, intimacy and household responsibilities.
  • Look after your own physical and emotional health and accept support from other people.
  • Seek professional help early if either of you is struggling to cope.

Understand That Prostate Cancer Is Not One Disease

Prostate cancer can behave very differently from one person to another. Some cancers remain within the prostate and grow slowly, while others are more likely to grow, spread or require treatment sooner.

Your husband’s treatment recommendations will depend on factors such as his PSA level, biopsy Grade Group, MRI findings, cancer stage, general health and personal priorities. Comparing his diagnosis with another person’s experience may therefore create unnecessary worry because their cancer and circumstances may be very different.

For localised prostate cancer, suitable options may include active surveillance, radical prostatectomy or radiotherapy. Locally advanced, recurrent or advanced prostate cancer may require hormone therapy, radiotherapy, chemotherapy or other treatments, sometimes in combination. Not every treatment is appropriate for every stage, so his specialist team should explain which options apply to his individual diagnosis.

Ask Him What Kind of Support He Wants

It is natural to want to help your husband as much as possible, but his needs may not always be what you expect. A cancer diagnosis can change how someone wants to communicate, receive support or manage their privacy.

Ask him what kind of help would feel most useful. He may want you to attend appointments, help research information, speak with family members or organise practical tasks, while still wanting to manage some decisions himself.

Keep checking in as his treatment journey continues. The support he needs after diagnosis may be different from what he needs during treatment, recovery or follow-up care.

Listen Without Trying to Fix Every Feeling

You may naturally want to reassure your husband that everything will be okay. While reassurance can be comforting, it can sometimes make it harder for him to share fears about treatment, sexual changes, urinary problems or the future.

Try to listen without immediately trying to solve the problem or change how he feels. Simply acknowledging that the situation is difficult can help him feel understood and create space for more open conversations.

You do not need to stay positive all the time. Both you and your husband may experience anxiety, sadness or uncertainty, and making space for these emotions is an important part of supporting each other.

Attend Medical Appointments With His Permission

Your husband may find it helpful to have you attend medical appointments with him, especially when diagnosis and treatment options are being discussed. These conversations can involve complex medical terms and a lot of information to take in at once.

With his permission, you can help by taking notes, reminding him of questions and discussing what was explained afterwards. You may both remember different details from the appointment, so comparing your understanding can be useful.

Your husband’s consent is important throughout this process. Make sure he is comfortable with you being involved, especially if you will be receiving updates, speaking with the healthcare team or discussing confidential information on his behalf.

Keep Important Medical Information Together

Your husband’s cancer care may involve different specialists, tests and hospital appointments. Keeping important information such as clinic letters, PSA results, MRI reports, biopsy findings, medication details and appointment dates in one place can make the process easier to manage.

Use a folder, notebook or secure digital record that your husband is comfortable sharing with you. You can record when tests were done, what the results showed and what the medical team recommended next.

Try not to rely only on memory, especially during stressful times. Having clear records can be helpful if you need another medical opinion or need to share his treatment history with another healthcare professional.

Support His Decision Without Taking Control

Your husband’s treatment decision may affect both of you, and it is understandable that you will have your own questions, preferences and concerns. You can explain how the available options may affect your shared life while recognising that your husband should remain at the centre of decisions about his body and treatment. The final plan should be reached through shared decision-making between him and his clinical team, with your involvement when he wants it.

How You Can Support His Treatment Decision

AreaWhat You May Feel or NoticeHow You Can HelpWhy It Matters
Treatment choicesYou may have your own preferences because of concerns about cancer control, side effects or your shared futureExplain your concerns honestly while avoiding pressure and listening to his prioritiesSupports open discussion while keeping your husband at the centre of decisions about his treatment
Understanding optionsDifferent treatments have different benefits and side effectsAttend appointments and learn about available choicesHelps both of you feel more informed
His personal prioritiesHe may focus on cancer control, urinary function, sexual health or recoveryAsk what matters most to him when considering treatmentEnsures the decision reflects his needs
Emotional supportHe may feel uncertain, anxious or overwhelmedListen, acknowledge his concerns and ask what type of support would feel helpfulReduces feelings of facing the decision alone
Avoiding pressureYou may worry about choosing the most appropriate treatmentRemember there is no single best option for everyoneRecognises that the most appropriate option depends on his cancer, health and priorities
Ongoing partnershipTreatment decisions can affect your shared lifeContinue discussing concerns before and after treatmentHelps you both adjust to changes together

Understanding Active Surveillance

Active surveillance may be offered when your husband has localised prostate cancer that is considered unlikely to cause immediate harm. It involves a structured monitoring programme that may include regular PSA tests, clinical reviews, MRI scans and repeat biopsies when clinically appropriate.

Active surveillance does not mean that the cancer is being ignored. Its purpose is to delay or avoid the side effects of treatment while checking carefully for signs that the cancer is becoming more clinically significant. Treatment with curative intent can be considered if tests show meaningful progression.

You can support your husband by helping him keep track of appointments if he would find this useful and encouraging him to discuss unexplained results or concerns with his clinical team. However, try not to allow every PSA result to dominate daily life, as individual results need to be interpreted alongside previous PSA levels, MRI findings and biopsy information.

Prepare Practically If He Is Having Surgery

Radical prostatectomy is a major operation, even when it is performed using robotic or keyhole techniques. After surgery, your husband may need support with transport, meals, household tasks and medication while he recovers.

Before the procedure, discuss what he may need during his hospital stay and when he returns home. Planning ahead for shopping, daily tasks and practical support can make the early recovery period easier.

You can also help by making the home more comfortable for recovery. Move commonly used items within easy reach so he does not need to stretch, bend or lift more than necessary while healing.

Help Him Manage the Catheter Safely

After radical prostatectomy, your husband will usually have a urinary catheter while the connection between the bladder and urethra heals. Before discharge, the hospital team should explain how to empty the drainage bag, secure the tubing, change between bags if required and recognise possible problems.

You can help by making sure that he has the supplies and contact details provided by the hospital. Check that the tubing is not trapped, sharply bent or being pulled, but encourage him to manage his own catheter care when he feels able. This can help preserve his confidence and independence.

Contact the surgical team promptly if the catheter stops draining, falls out, repeatedly leaks or is associated with increasing lower abdominal pain, fever, large blood clots or worsening bleeding. Do not attempt to remove, reinsert or flush the catheter unless his clinical team has specifically trained and instructed you to do so. Postoperative catheter advice should be based on the instructions provided by the treating hospital because catheter-care protocols can vary.

Expect Urinary Leakage After Surgery

Urinary leakage is common after the catheter is removed because the muscles and tissues involved in bladder control need time to heal. For your husband, leakage may happen when he stands, coughs, sneezes, walks or lifts objects.

Recovery can take time, and improvement often happens gradually over the following weeks and months. Your support and patience can help him feel more comfortable during this stage.

You can help by keeping pads and spare clothing available without making your husband feel embarrassed or dependent. Mattress protection and easy-to-wash clothing may also reduce practical stress. Encourage him to contact his clinical team, continence service or pelvic health physiotherapist if leakage is not improving as expected, suddenly worsens or is significantly affecting his quality of life.

Encourage Pelvic Floor Exercises Correctly

Pelvic floor muscle exercises may support urinary control before and after prostate surgery, but correct technique is important. Tightening the abdominal, buttock or thigh muscles instead of the pelvic floor may make the exercises less effective and can cause unnecessary discomfort.

Your husband can identify the pelvic floor muscles by imagining that he is trying to stop himself passing urine and wind at the same time. He should not repeatedly stop and start his urine flow as an exercise because this can interfere with normal bladder emptying.

Encourage him to follow the programme recommended by his surgical team or pelvic health physiotherapist. Pelvic floor exercises may be started before surgery, but they should not be performed while the catheter is in place. They can usually be resumed after catheter removal according to the instructions provided by his clinical team.

Recovery varies, so correct technique and regular practice are more important than completing as many contractions as possible. If he is uncertain whether he is using the correct muscles, he should ask for advice from his clinical team or a pelvic health physiotherapist.

Support Him During Radiotherapy

External beam radiotherapy may involve several hospital visits, although the number and timing of appointments depend on the type of radiotherapy and your husband’s individual treatment plan. You can help with transport, appointment organisation and practical responsibilities at home or work if he would find this useful.

Possible short-term side effects include tiredness, urinary frequency or urgency, discomfort when passing urine and changes in bowel habits. These effects may develop gradually during treatment and can continue for a period after the course has finished.

Radiotherapy can also affect erections, ejaculation and fertility, and some sexual effects may become apparent months or years later. Encourage your husband to report difficult or persistent symptoms rather than assuming that they must simply be accepted. His radiotherapy team can explain which effects are expected and what support or treatment may be available.

Understand the Effects of Hormone Therapy

Hormone therapy reduces testosterone levels or blocks its effects, which can slow the growth of prostate cancer. It may be used with radiotherapy or as part of treatment for locally advanced, recurrent or advanced prostate cancer.

Possible effects include hot flushes, fatigue, reduced sexual desire, erection difficulties, weight gain, loss of muscle strength, breast tenderness and changes in mood. These changes are treatment-related and should not be interpreted as a lack of effort, affection or interest in the relationship.

Longer-term hormone therapy can also weaken the bones and may increase the risk of conditions such as type 2 diabetes, heart disease and blood clots. His clinical team may recommend checks of his blood pressure, blood sugar, cholesterol and bone health, depending on the type and duration of treatment.

Encourage your husband to discuss troublesome symptoms rather than stopping or changing hormone therapy himself. Some effects can be treated or reduced, although improvement after treatment ends may take several months or longer.

Support Him During Chemotherapy

Chemotherapy is mainly used for advanced prostate cancer, although it may sometimes be added to other treatments for localised or locally advanced cancer that has a high risk of spreading. It may be given alongside hormone therapy or offered later if hormone therapy is no longer controlling the cancer effectively.

Your husband may experience fatigue, changes in appetite, nausea, hair loss, mouth problems, bruising or numbness and tingling in his hands or feet. You can help by keeping the hospital’s 24-hour treatment number accessible, helping with practical tasks and encouraging him to report side effects early.

Chemotherapy can temporarily reduce the number of white blood cells that fight infection. Contact his oncology team immediately if he develops a fever, feels hot and shivery, suddenly feels unwell even with a normal temperature or develops another possible sign of infection. Follow the temperature limits and emergency instructions given by his own hospital rather than waiting for the next appointment.

Do not give over-the-counter medicines to lower a fever before speaking to the oncology team, as this could hide an important symptom. Call 999 for severe breathlessness, chest pain, collapse, confusion or another immediately life-threatening problem.

Take Fatigue Seriously

Cancer-related fatigue is different from normal tiredness and may not improve fully with rest. For your husband, it can affect his energy levels, work, social activities, exercise and everyday tasks.

You can help by planning important activities for the times when he usually feels more energetic. Breaking larger tasks into smaller steps may make daily life feel more manageable and reduce pressure.

Gentle physical activity can support some people during and after treatment, but he should increase activity gradually and follow advice from his healthcare team. Staying active when appropriate may help support his physical health, mood and overall wellbeing.

Help With Medicines Without Taking Over

Your husband may be prescribed medicines to manage pain, sickness, treatment side effects or other health conditions. If he would find it helpful, you can support him by organising a medication list, setting reminders or checking that prescriptions are collected.

Do not change doses, stop prescribed treatment or add over-the-counter medicines, vitamins, herbal remedies or supplements without advice from his doctor, specialist nurse or pharmacist. Some products can interact with cancer treatment, increase bleeding risk or make treatment less effective.

Encourage your husband to report side effects promptly. His clinical team may be able to adjust the timing, change a supportive medicine or recommend another safe way to manage the problem. Any changes to cancer treatment itself should be made only by the responsible clinical team.

Know When to Seek Medical Advice

New or worsening back pain accompanied by weakness or numbness in the legs, difficulty walking or new loss of bladder or bowel control may indicate metastatic spinal cord compression. Call 999 or attend A&E immediately, as this is an oncological emergency that requires urgent assessment.

Seek prompt advice from his clinical team if he develops a fever, increasing wound redness, worsening pain, difficulty passing urine, catheter problems, persistent vomiting, unexpected bleeding or another warning sign listed in his treatment instructions. If he is receiving chemotherapy, contact his oncology team immediately if he feels unwell or develops possible signs of infection. If you cannot reach the oncology team, contact NHS 111.

Call 999 if he develops severe difficulty breathing, chest or upper-back pain, a very fast heartbeat, collapse, severe confusion or uncontrolled bleeding. Contact NHS 111 or his clinical team urgently if he develops sudden breathlessness, coughs up blood or has new pain, redness or swelling in one leg. If these symptoms are severe or occur with chest pain or collapse, call 999.

Warning signs can differ according to the treatment and stage of the cancer, so always follow the emergency instructions provided by his healthcare team.

Notice Changes in His Emotional Wellbeing

You may notice that your husband feels frightened, angry, withdrawn or less confident after his diagnosis or treatment. Changes to urinary control, sexual function, physical strength and body image can affect how he feels about himself and his future.

Encourage him to speak with his GP, specialist nurse or cancer team if low mood, anxiety, poor sleep or loss of interest continues or starts affecting daily life. He does not have to manage these feelings alone, and emotional support is an important part of recovery.

Depression and anxiety can occur before, during or after prostate cancer treatment. By listening, showing patience and helping your husband access support when needed, you can play an important role without becoming solely responsible for his mental health. If he needs urgent mental health support but there is no immediate danger, contact NHS 111 and select the mental health option or ask his GP for an urgent appointment. Call 999 or attend A&E if he has seriously harmed himself, taken an overdose or cannot keep himself or another person safe.

Keep Communicating When He Withdraws

You may notice that your husband becomes quieter or avoids talking about his feelings after his diagnosis or treatment. Some men find it difficult to discuss fear, vulnerability or changes to sexual function because they are trying to protect their partner or struggling to find the right words.

Choose a calm time to start conversations rather than raising difficult topics when either of you feels tired or upset. You can share what you have noticed and ask whether he wants to talk now or would prefer to discuss it later.

Giving him space can be helpful, but avoiding the subject completely may create distance between you. Gentle and regular conversations can help both of you understand each other’s feelings and reduce misunderstandings.

Do Not Treat Erectile Dysfunction as Rejection

Erectile difficulties are a recognised side effect of treatments such as prostate surgery, radiotherapy and hormone therapy. These changes do not mean your husband is no longer attracted to you or interested in your relationship.

  • Treatment effects: Erectile difficulties can occur after prostate cancer treatments and are often related to physical changes rather than a lack of attraction
  • Emotional impact: Your husband may feel embarrassed, frustrated or worried about how these changes affect your relationship
  • Physical affection: Remembering that intimacy does not always have to lead to sex can help reduce pressure for both of you
  • Open communication: Talking honestly about concerns and feelings can help you stay connected during recovery
  • Professional support: His healthcare team can discuss available treatments and support options for sexual difficulties

Erectile difficulties can be challenging for both partners, but they do not define the strength of your relationship. With patience, reassurance and open conversations, you can continue to maintain closeness while adjusting to changes in intimacy.

Understand Dry Orgasm and Fertility Changes

After radical prostatectomy, your husband will no longer ejaculate semen because the prostate and seminal vesicles are removed. He may still experience an orgasm, but it will be dry and may feel different from before.

Natural conception through sexual intercourse will no longer be possible after surgery. If having biological children in the future is important to you both, fertility preservation options such as sperm storage should be discussed before treatment.

Understanding these permanent changes before surgery may help reduce unexpected distress. Talking openly with his healthcare team about possible effects on orgasm, ejaculation and fertility can help you both prepare for what to expect.

Accept That Your Roles May Change Temporarily

You may need to take on extra responsibilities during your husband’s treatment and recovery, such as cooking, driving, household tasks or managing appointments. For him, needing more help than usual may feel difficult, especially if he is used to being independent.

Talk openly about which tasks need to change and which activities he can continue safely. Supporting him does not mean you have to take over everything or remove his independence.

As his strength and confidence improve, gradually return responsibilities where possible. This can help him regain a sense of control while also preventing you from feeling overwhelmed.

Discuss Work and Money Early

Prostate cancer treatment can affect working hours, travel, household income and everyday expenses. Your husband may need time away from work, and you may also need flexibility to attend appointments or support him during recovery.

Encourage your husband to speak with his employer early if he feels comfortable doing so, and keep relevant appointment and treatment documents organised. His hospital may have a Macmillan adviser, welfare rights service or social worker who can explain possible benefits, employment rights, travel support and help with treatment-related costs. Citizens Advice may also provide practical guidance.

Cancer can create practical and financial pressures for both patients and partners. Asking for help early can give you more options and prevent problems from becoming more difficult to manage later.

Let Other People Help

Friends and family may offer support but wait for you to explain what would be useful. Giving them specific tasks, such as preparing meals, helping with shopping, providing transport or attending appointments with your husband, can make it easier for them to contribute.

Your husband should be involved in deciding who knows about his diagnosis and how much information is shared. Agreeing on a simple update can help you avoid repeating private medical details many times.

You do not have to manage everything alone. Accepting help from people you trust can reduce pressure, protect your wellbeing and make the treatment journey easier for both of you.

Look After Your Own Physical and Emotional Health

Supporting someone with cancer can be demanding, even if you do not think of yourself as a carer. You may be providing emotional support, managing appointments, organising daily tasks or helping your husband during recovery.

Try to continue looking after your own health by attending your appointments, getting enough rest, eating well, staying active and making time for things that help you recharge. Taking time for yourself does not mean you are leaving your husband unsupported.

If you are struggling with sleep, anxiety, low mood or feeling overwhelmed, speak to your GP or seek support. Looking after your own wellbeing can help you continue supporting your husband throughout his treatment journey.

Consider a Carer’s Assessment

You may be considered an unpaid carer if you regularly provide emotional, practical or personal support to your husband, even if you do not use the term carer yourself. With your husband’s consent, health and social care professionals should involve you appropriately in discussions and provide information that may help you support him.

In England, you can ask the adult social services department at your local council for a free carer’s assessment. It considers how caring affects your physical and emotional health, work, relationships and free time. It may identify practical support, advice about benefits, help with transport or opportunities to take a break from caring. You do not need to wait until you feel overwhelmed before requesting an assessment.

Carer support arrangements differ across England, Scotland, Wales and Northern Ireland. Ask your GP, cancer team or local authority which services and assessments are available where you live.

Ask for Professional Support Before You Reach Crisis Point

You and your husband do not have to manage every emotional, sexual or practical challenge alone. Support may be available from his clinical nurse specialist, GP, urologist, oncologist, pelvic health physiotherapist, continence service or psychosexual therapist.

Cancer charities and support organisations can also provide information, helplines and opportunities to connect with others who understand what you are experiencing. Couples counselling may be helpful if treatment has affected communication, intimacy or your relationship.

Try to ask for support before either of you feels unable to cope. Seeking professional help is not a sign of failure. It is a positive step that may help you manage the emotional, practical and relationship changes that prostate cancer can bring.

Myth vs Fact

MythFact
You must remain positive at all times.You can be supportive while also acknowledging fear, sadness and uncertainty. Both partners are allowed to have difficult emotions.
You should make his treatment decision for him.You can share your concerns and discuss how treatment may affect your shared life, but your husband should remain at the centre of shared decision-making with his clinical team.
Active surveillance means that nothing is being done.Active surveillance is a structured monitoring programme involving tests and clinical reviews, with treatment considered if the cancer shows clinically important progression.
Robotic surgery has only minor side effects.Robot-assisted radical prostatectomy is still major surgery and can cause urinary leakage, erectile dysfunction, dry orgasm and other complications.
Erectile dysfunction means that he is no longer attracted to you.Erectile dysfunction is commonly caused by physical or hormonal treatment effects and does not automatically reflect attraction, affection or relationship quality.
You should manage every aspect of his recovery.Practical help can be valuable, but supporting independence and respecting his preferences can protect confidence and reduce pressure on both partners.
You should wait until problems become severe before asking for help.Early support from the cancer team, GP, continence service, physiotherapist or psychosexual therapist can make many difficulties easier to manage.

Frequently Asked Questions

1. What should you do first if your husband is diagnosed with prostate cancer?
Give yourself and your husband time to process the diagnosis and understand what it means. Learning about his condition and asking his healthcare team questions can help you both feel more prepared.

2. How can you support your husband after his diagnosis?
You can support him by listening, attending appointments with his permission, helping with practical tasks and respecting his decisions. The type of support he needs may change throughout his treatment journey.

3. Should you attend your husband’s medical appointments?
If your husband is comfortable with it, attending appointments can be helpful. You can take notes, help remember information and discuss the advice afterwards.

4. Should you help your husband choose his prostate cancer treatment?
You can share your thoughts, explain how each option may affect your shared life and help your husband prepare questions for his clinical team. However, he should remain at the centre of the decision, which should be reached through shared decision-making based on his cancer, health and personal priorities.

5. How can you help your husband after prostate surgery?
You can support his recovery by helping with transport, meals and household tasks, following the discharge guidance and being patient with urinary leakage, fatigue or sexual changes. Keep the surgical team’s contact details accessible and seek advice if his catheter stops draining, he develops fever or worsening pain, or another warning sign occurs.

6. How can you support your husband’s emotional wellbeing?
Listen to his concerns without trying to fix every feeling immediately. Encouraging him to speak with his healthcare team or seek professional support can help if he is struggling emotionally.

7. Will prostate cancer treatment affect your sex life?
Prostate cancer treatment can affect erections, sexual desire, ejaculation, orgasm and fertility. Open communication, patience and professional sexual-health support can help you both adjust without placing pressure on either partner.

8. Does erectile dysfunction after prostate cancer treatment mean your husband is no longer attracted to you?
No. Erectile difficulties are a possible side effect of treatment and do not mean a loss of attraction or love. Understanding this can help reduce pressure and support intimacy in your relationship.

9. How can you look after yourself while supporting your husband?
Make time for your own health, rest, relationships and emotional needs. Seeking support for yourself can help you continue supporting your husband.

10. When should you seek professional help as a couple?
Professional support may be helpful if either of you is struggling with anxiety, low mood, communication, intimacy, caring responsibilities or treatment-related practical pressures. You do not need to wait until the situation has reached a crisis before contacting the cancer team, GP, counsellor or another appropriate service.

Final Thoughts: Moving Forward Together After a Prostate Cancer Diagnosis

A prostate cancer diagnosis can affect both you and your husband, and adjusting to the emotional, physical and practical changes may take time. Your support, patience and willingness to communicate can make a meaningful difference throughout his diagnosis, treatment and recovery.

Remember that supporting your husband does not mean you have to manage every challenge alone. Medical decisions, treatment side effects, changes in intimacy and emotional difficulties can all be easier to navigate when you both have access to the right information and professional support.

If your husband would like specialist advice about prostate symptoms, PSA changes or treatment options, he can contact us at Prostate Clinic London to arrange a consultation. With his permission, you can attend the appointment and support him during discussions about his diagnosis and care.

References

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